Those First Few Days to Help You with a Child who has Down Syndrome

Are you a first time parent to a child with Down Syndrome? You may have known about the diagnosis during your pregnancy or found out afterwards, like I did….either way I would strongly suggest turning off google, putting any leaflets away you’ve been given by the professionals and read on. This blog is for you and is not just written from my own personal experience but from shared parenting secrets to you from many that have been in your shoes.

Congratulations, you have a newborn! Now if like me this child is your first you’ve probably got ready or possibly even read the ‘parenting handbooks’. Put them away in a drawer for now, even if your newborn is not your first child; grab a brew and read these top tips that many parents of a child with Down Syndrome begin with

‘treat your child like you would any other child, through each and every stage. See past the diagnoses, love and discipline just as you would your oldest’

Ellie, days old

Enjoy your beautiful baby as that is what you have in front of you, a beautiful baby.
Stop worrying, stop reading and stop googling; take each day forward and when you’re ready to learn more; consider joining a supportive group such as
https://www.facebook.com/groups/801281006738525/?
to ask any questions you have from those that have lived through them.

Another main point that many parents agreed was to enjoy every minute, like everyone else your child will grow up just as quick. My daughter Ellie has just turned 10 and I feel like I’ve blinked. Additionally in those first few days and maybe even longer don’t refuse help; you may be emotional about having a newborn even without having a diagnosis of Down Syndrome, so don’t try and play super-parent and do everything, take help when offered. The storm of emotions you will be going through will pass and things will get easier, we all promise you that. Just breathe and hold your baby.

Be kind to yourself and one thing that personally worked for me was talking to my husband openly and honestly about how I was feeling. Emotions such as sadness, concerns, worrying too much about the future; you may even have health problems (Ellie has a hole in the heart) but don’t be scared and don’t look too far ahead. Cuddle and ‘squish’ your baby and enjoy the magical journey that you are on.

As your baby gets older day by day, don’t stress the small stuff, the milestones, the appointments; go to baby groups, the park and find other parents that will support you. Trust your parenting instinct always and remember your little bundle of joy will be as unique as everyone else so take those photos and videos and give yourself and your child time to get into your routine to begin your journey.

And finally,

‘look forward to the most enthralling, frustrating, beautiful, fulfilled, exciting, worrying, scary, proud, enriching and varied life journey you’ll be privileged to be on with your baby.

If reading this has helped you in anyway, please comment below or get in touch with me through any platform via @lintr.ee/shaz_crowley. Thank you to the parents of the above group #WCAT for helping me put this together and as always, thank you for reading.

Until Next Time
Sharon x


Changing Attitudes

When you find your passion, the reason to get out of bed each morning, you will give it 100% focus and make plans and take continuous action. This is what I have found recently, as I became a little jaded with the path I was on so therefore I took some time out and now I am back to begin the next chapter of my work from home journey.

What has changed?
Let me introduce myself especially if this is the first time you are reading my blog. I’m Sharon, mum of two and full time carer to my daughter, Ellie who will be 10 next month. Ellie has Down’s Syndrome and my life changed direction when I gave birth to her. Not only did I become a new mum at 34, but I had a child with a disability and a disability until then that I had not heard of.
Fast forward ten years and I am now a work from home mum. I take both children to school, to their clubs and not missing Ellie’s appointments. After being in work full time since I was 16, becoming a full time housewife was not for me and as such an enjoyable journey working from home. Three and a half years of Network Marketing has helped me build a network of friends, business skills and a lot of social media tips but the passion for me wasn’t there in the end.

Meet Ellie & Billy

Which brings me right up to today. After a coaching call with @LeonaBurton from #mumsinbusinessassociation I was advised to journal daily and reflect on what I enjoy, what excited me, what I don’t enjoy too and with a tonne of personal development daily I chose to find ‘me’ again. I want to find something I can do that will help others, something that is inspiring to others and that brings me to sharing my version of ‘Changing Attitudes’, the inspiration derived from my children. I am now on a mission to help, with many others, change the attitudes towards people with Down’s Syndrome. In addition, help my daughter and others feel accepted, included and above all reach their full potential.

Do I know how, not yet? But isn’t that the exciting part? I’ve taken the first step and put this blog out there for you to read and I hope you will follow my journey as I plan to play big and share regular tips, ideas and inspirational stories from now on.

Thank you for reading, if you would like to connect with me, you can via linktr.ee/shaz_crowley and comment below if you know someone that has Down’s Syndrome.

Sharon x