Carer’s Allowance and Free Access

Are you a carer, do you know what you are entitled to as a carer? Not sure, then stay with me and read on. Hi I’m Sharon (if reading for the first time) and I am a carer to my daughter Ellie, who is 10 and has Down Syndrome.

A definition of carer in the UK is ‘anyone who cares, unpaid, for a friend or family member who due to illness, disability, a mental health problem or an addiction cannot cope without their support’ according to The Carer’s Trust.

As a carer you are entitled to Carers Allowance, which in the UK is £66.15 a week if you care for someone at least 35 hours a week and they get certain benefits. There are other criteria and please refer to https://www.gov.uk/carers-allowance for assistance.

After speaking to several mums I was curious as to whether this allowance was justified. I know it was needed for our family as it has become the income I lost giving up work, but at the back of my mind was always the thought, ‘why are we entitled to it’ and the next paragraph sums up why every carer is 100% entitled.

Many carers give up work, like myself, and this allowance subsidizes the family income. Some put the money towards travel for additional appointments, many use it for specific items that can help their child; sensory toys, private therapies, specialised clothing/equipment and a few put it towards their children’s future needs. So yes every carer should apply for that allowance.

So now you get the picture about the allowance, let’s talk free access. Now every young child generally can’t go to an attraction on their own, but most teenagers and young adults can however people with Down Syndrome may often need a carer for some supervision and with some help from this fabulous group https://www.facebook.com/groups/DLAchildrensDaysOut/
we have created a list of places where carers go free.
Please see attached as this will be updated

I would love to know if you have found this useful or if you could add to the list, please comment below and as always thanks for reading.

Until Next Time,
Sharon x

If I Knew Then What I Know Now!

It’s a common saying isn’t it? ‘If only I knew then what I know now’ but this couldn’t be more relevant to me as I recently celebrated my daughters 10th birthday. Ellie was born with Down’s Syndrome and diagnosed a few hours later; for those parents in the same situation you can only imagine the thoughts that ran through my head at that time (but that’s for a different post).

So I wanted to share with you some notions, with the help of other parents, that I wish I had known back then, in case you are reading this as a first time parent.

Ellie on holiday aged 2

One important thing to remember is your child is unique and has your genes, so whilst there will be similarities with others born with Down’s Syndrome they will be more like you than you realise. In addition due to the wide spectrum of learning difficulty in Down’s Syndrome you cannot predict what your child will or won’t be able to do.

From a mum, here are her words “There is no need for fear, my son brings me more joy than anyone ever could…..he makes me proud every single day.”

You may become or you may not fixated with milestones (I sure did) but when your child hits them, and they will in their own unique way; you will be over the moon, jump up and down, record it and cry with laughter 🙂

Other parents with a child with Down’s Syndrome will become your best friends as they understand exactly what you’re going through. I can strongly recommend joining a supportive group as soon as you feel ready (one link is below and another in linktr.ee/shaz_crowley)

Forget the myths and sterotypes; most people with Down’s Syndrome are living a completely different independent life to those from only a few decades ago due to medical progress, interventions, inclusion and technology; Ellie is a whiz on her ipad (see previous blog)
https://sharoncrowley.wordpress.com/2019/05/08/challenging-some-myths-and-stereotypes-around-downs-syndrome/

Yes there will be downs as well as ups, yes there may be lots of appointments, health issues and other additional needs to contend with but from one mum to another; you can do this. Have faith, trust your gut instinct every time and enjoy the delight of being a mum. There will be lots of happiness to come and your child will not only enrich your life but everyone else they meet. They will give you some fresh ideas on life and expectations so believe that everything is going to be alright.

Pouty

A special thank you to the parents of this group (#wouldntchangeathing) for their words of wisdom and insights
https://www.facebook.com/wouldntchangeathingdotorg/

Thank you as always for taking the time to read and if you would like to connect with me, connect via @linktr.ee/shaz_crowley

Until Next Time
Sharon x